
Each meeting has either an agenda (business to get done) or an invited speaker on a topic for the entire group. Past speakers have been Joe Scullin of UCP, Ruth Landsman of Ed-Law Center, and Doug Dye, attorney with expertise in special needs trusts and other financial and legal issues for our families. This group is as grass-roots as it gets, members suggest and invite speakers, make up the audience, and (eventually) work online.
Why we do what we do: yes, it starts out as for the children, but it as much for the parents; to learn, to support, to commiserate, and eventually to grow to accommodate the challenges we face -- more together than before the meeting.
Kudos to Jill Spector for starting this group, and to Jean McCoubrey for keeping it going for all these years -- I was supposed to put together a website, the easiest part of this project, so of course it took the longest time :-(. I will start as the first poster, and invite people to either respond to a given post or email me with content and other ideas. It may take time, but I am hopeful that this blog can help continue the work of SPEC outside of the meetings, perhaps even connect to other resources and groups. Your help is encouraged and appreciated -- J.D.
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